Matthew Tilford has been advocating for himself and others with #spinalcordinjury and #disability on his blog and social media as he faces work challenges during Covid-19. Comment with blogs/vlogs you follow! Share your own story with More Than Walking!
Trouble sleeping after SCI? Check out Craig Hospital's tips for better sleep and videos from Good Shepard Rehab, Jenny Rolls On (C6/7), and Brian's Paralyzed Living (T1) YouTube channels. Share your own tips, useful links, and questions below, or submit your own demonstration video for More Than Walking's YouTube channel!
How do you cook from a wheelchair? Check out Ian Ruder's 2017 New Mobility article, "Take Back the Kitchen" for some inspiring examples of Paras and Quads who love to cook, and Craig Hospital's Helpful Tools For Cooking video for a great overview of what's available and how they're used!
Nakietha Rose highly recommends the Pasta Express for easy pasta cooking.
Jonathan Sigworth uses the Zanmini Egg Cracker for no-mess eggs.
Share your questions, tips, recipes, and links to useful products you use!
Those of us with spinal cord injuries around the world need to follow official guidelines to avoid Covid-19, but that doesn't mean we can't have fun! Mike Hurlock is a family therapist, and in the midst of self-isolation has started a YouTube channel to share his therapeutic hobby of video gaming as a C4 complete quadriplegic (search for Doctor Quad PhD to subscribe). Whether it's staying calm and active mentally or physically, how are you coping with life's changes since Covid-19? Respond in comments below or submit a video for More Than Walking's YouTube channel!
Nakeitha Rose recently interviewed fellow More Than Walking peer mentor Tyquisha Hennegan about her experience taking care of 2-month-old King and 6-year-old Hayleigh. Reply to share your own experience! Read more stories on parents with disabilities at AbleThrive.com, which curates articles and videos of various disability topics from around the world.
Nakeitha’s Interview with Ty Ty Hennegan
Nakeitha: Have you always wanted children?
Ty: Yes I actually have a 6 year old as well.
Nakeitha: What do you find most challenging about parenting with a disability?
Ty: It’s hard trying to cater to there every need.
Nakeitha: When it comes to your disability on a scale from 1-10 how difficult would you say it is being a parent?
Ty: 6 it’s not dat bad.
Nakeitha: What are your future goals as a parent?
Ty: Become more independent so we can do more.
Nakeitha: Thank you, Ty, for sharing a lil bit of your world with us. Congratulations on your second addition to the family & good luck with all your future goals!
Watch videos of at-home exercises and download guidelines for both paraplegia and quadriplegia (tetraplegia) from SCI Action Canada. Find more information on healthy living with spinal cord injury at SCI-U, a free online course on physical activity, parenting, sex, pain, wheelchair adjustment, skin, nutrition, bowel, bladder, and more. Consider sharing your own exercise routines or adaptation videos on More Than Walking's YouTube channel!
Plan your next movie night by checking out @AndrewPulrang's Forbes article, "Disability Movies Aren’t What They Used To Be. That’s Good!" See below for what films peer mentors Kendra Muller-Taylor and Joe Stone would recommend. Reply with your film recommendations and thoughts!
Kendra Muller-Taylor: "Have you seen Kills on Wheels? It's a fantastic Hungarian movie regarding a multifaceted approach to disability. It shows both good and bad and is really well-rounded, while being absolutely hilarious. A lot of the hilariousness is subtle things that only disabled individuals would get. Just recently watched and was pleasantly surprised, as I thought it might just be another film that gets disability wrong. It is rated R as it has a bit of violence as the whole trope is of wheelchair "hitmen," and there's some swearing in Hungarian. The characters are likable with all their faults and there's not really any ableist tropes."
Joe: "We just watched Forest Gump last night for the 1st time with my kids and it was the 1st time since my injury 8 yrs ago. Lieutenant Dan's character really hit home more than ever before and triggered a lot of emotion watching the growth of his own perception and feelings about his disability. My favorite part was when they were on the shrimp boat while the storm was raging and Lt Dan was raging in the crow's nest having it out with God, saying "Is this all you got?!" And then how right after the storm died it was like the rage he was holding onto died and he reached a transformational stage that seemed to have that peace that surpasses most human comprehension. I can totally relate and am grateful for this timeless movie. I would highly suggest everyone watching this sometime in the very near future!"
Covid-19 poses the greatest risk to those of us with underlying health conditions and disabilities. So, if you're a wheelchair user, here are some tips from Numotion on how to protect yourself and others.
#morethanwalking #covid19 #spinalcordinjury
More people than ever with Spinal Cord Injury are sharing their life experiences on YouTube, raising awareness and teaching skills. Check out these channels recommended by members of the More Than Walking peer mentor community! Suggest others in the comments below!
Adapt To Perform
Christopher & Dana Reeve Foundation
Wheelsnoheels - Gem Hubbard
Download the Shepherd Center’s Personal Care Manual for free to learn more about how the respiratory system (in Ch. 5) functions after SCI and how to prevent and fight breathing complications like pneumonia. https://play.google.com/store/books/details/Shepherd_Center_Personal_Care_Manual_The_Key_to_In?id=yHv7AgAAQBAJ
#covid19 #spinalcordinjury #morethanwalking
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